General Articles|Evaluation Resources|Related Classes|Press|Legal/Policy|Conferences|Data Centers|ClearingHouses|Research Articles|Articles on Participatory Research with People with Disabilities
General Web Articles
- A (partisan) site describing Terri Schiavo’s case.
- Legal tide has turned against the disabled (Chicago Tribune, November 25, 2001)
- Expression Recognition to help identify squinting
- Talking ATMs in the area
- Top Disability Rights stories of 2001
- Blindekuh: the Blind Cow Restaurant (Wall Street Journal, Nov 28th, 2000)
- Assistive Technology should Empower, Not “Help” Disabled People (Laura Hershey)
- On A Roll – Talk Radio on Life & Disability Sundays 6-8 PM ET on 39 Radio Stations and the Internet. On A Roll is now a part of the community at iCan.com
- Slashdot thread on accessibility of unix
- “I am sam” movie review?
- Art, Technology and Disability: Interviews with Three Artists (Disability World)
- Cellphones are innaccessible to those with hearing aids (CNET tech news)
- Wired article on Autism in Silicon Valley (Contentious, many experts don’t agree with this) Information on the Video Descriptive Service conflict
- Conflict between the National Federation for the Blind and AOL
- THE GIMP STORE is designed by disabled people for disabled people whocan see humor and sarcasm in being different. We have T-shirts,
stickers and more to tell ’em how it is!
- Article about cochlear implants, and how it helped restore hearing for one individual.
- Business Week also has occasional articles about assistive technologies, the archive
has 40+ articles going back to January 2001?
- Interesting article about a deaf family from the Washington Post.
- The sit-in that led to section 504 (NPR)
- Benefits of assistive tech go beyond the disabled (government report on their experiences)
- Wired article on use of wearable computers by autistic kids
ADA & other legal/policy information
Data and Research Centers on Disability
Other clearinghouses for information
- UTOPIA project (elders and technology). Also hosted a
workshop on HCI and the Older Population.
- Usability testing with screen reading
- Participatory Research: Involving people with disabilities in disability research
- Human Values and the Design of Computer Technology p. 65-89 Disability, Inability & Cyberspace
- Disability and Rehabilitation special article on Assistive Tech?
- Adaptech project (computer technologies for post secondary students with
- Discussion of Augmentative and Alternative Communication and Autism (originally
held on Thursday, April 18 2002 12-1:30)
- Barnes, C. and Mercer, G. Breaking the mold? An introduction to doing disability research. in Colin Barnes, G.M. ed. Doing disability research, The Disability Press, 1997, 1-14.
- Behr, S.K. and Murphy, D.L. Research progress and promise: The role of perceptions in cognitive adaptation to disability. in Turnbull, A.P., Patterson, J.A., Behr, S.K., Murphy, D.L., Marquis, J.G. and Blue-Banning, M.J. eds. Cognitive coping, families, and disability, www.brookespublishing.com, 1993, 151-163
- Berger, R.J. Pushing Forward: Disability, Basketball, and Me. Qualitative Inquiry, 10 (5). 794-810, 2000
- Block, P. Sexuality, Fertility, and Danger: Twentieth-Century Images of Women with Cognitive Disabilities. Sexuality and Disability, 18 (4). 239-254, 2000
- Breslin, M.L. Disability Paradigms, 2002. http://guir.berkeley.edu/courses/assistive-tech/spring2002/mlb-paradigms.htm.
- Card, S.K., Moran, T.P. and Newell, A. The Keystroke-Level Model for User Performance Time with Interactive Systems. Communications of the ACM, 23 (7). 396-410, 1980. http://doi.acm.org/10.1145/358886.358895.
- Carmien, S., DePaula, R., Gorman, A. and Kintsch, A., Increasing worklpace independence for people with cognitive disabilities by leveraging distributed cognition among caregivers and clients. In Proceedings of the 2003 International ACM SIGGROUP Conference on Supporting Group Work, (Sanibel Island, FL, USA, 2003), ACM Press, 95-104. http://doi.acm.org/10.1145/958160.958176.
- Cole, E., Computer-based cognitive prosthetics: assistive technology for the treatment of cognitive disabilities. In Proceedings of ASSETS 1998, (Marina del Rey, CA, USA, 1998), ACM Press, 11-18. http://doi.acm.org/10.1145/274497.274502.
- Consolvo, S., Roessler, P., Shelton, B.E., LaMarca, A. and Schilit, B. Technology for Care Networks of Elders. Pervasive Computing. 22-29, 2004
- Cook, A.M. and Hussey, S.M. Assistive technologies: principles and practice. Mosby, Inc., St. Louis, 2002
- Coyne, K. and Nielsen, J. How to Conduct Usability Evaluation for Accessibility: Methodology Guidelines for Testing Websites and Intranets With Users Who Use Assistive Technology, Nielsen Norman Group, 2001. http://www.nngroup.com/reports/accessibility/testing/.
- Davies, R., Marcella, S., McGrenere, J. and Purves, B., The ethnographically informed participatory design of a PD application to support communication. In Proceedings of ASSETS 2004, (Atlanta, GA, USA, 2004), ACM Press, 153-160. http://doi.acm.org/10.1145/1028630.1028658.
- Edwards, A.D.N., Progress in Sign Languages Recognition. In International Gesture Workshop on Gesture and Sign Language in Human Computer Interaction, (1997), Springer-Verlag, 13-21
- Fell, H., Cress, C., MacAuslan, J. and Ferrier, L., visiBabble for reinforcement of early vocalization. In Proceedings of ASSETS 2004, (Atlanta, GA, USA, 2004), ACM Press, 161-168. http://doi.acm.org/10.1145/1028630.1028659.
- Forlizzi, J., DiSalvo, C. and Gemperle, F. Assistive Robotics and an Ecology of Elders Living Independently in Their Homes. Human-Computer Interaction, 19. 25-59, 2004. http://peopleandrobots.org/pubs/HCI1901&2pp25-59.pdf.
- Fraser, J. and Gutwin, C., A framework of assistive pointers for low vision users. In Proceedings of ASSETS 2000, (Arlington, VA, USA, 2000), ACM Press, 9-16. http://doi.acm.org/10.1145/354324.354329.
- Gill, C.J. The Social Experience of Disability. in Gary L. Albrecht, K.D.S.a.M.B. ed. Handbook of Disability Studies, Sage Publications, London, 2000, 351-372
- Hammel, J., Lai, J.-S. and Heller, T. The impact of assistive technology and environmental interventions on function and living situation status with people who are ageing with developmental disabilities. Disability and Rehabilitation, 24 (1). 93-105, 2002
- Hayes, G.R., Kientz, J.A., Truong, K.N., White, D.R., Abowd, G.D. and Pering, T., Designing capture applications to support the education of children with autism. In Proceedings of UBICOMP 2004, (Nottingham, England, 2004), Springer-Verlag. http://www.cc.gatech.edu/~gillian/research/Hayes-Autism-Ubicomp2004.pdf.
- Ho-Ching, W.-l., Mankoff, J. and Landay, J., Can you see what I hear? The Design and Evaluation of a Peripheral Sound Display for the Deaf. In Proceedings of the ACM CHI’03 Conference on Human Factors in Computing Systems, (Ft. Lauderdale, FL, USA, 2003), ACM Press, 161-168. http://doi.acm.org/10.1145/642611.642641.
- Hwang, F., Keates, S., Langdon, P. and Clarkson, J., Mouse Movements of Motion-Impaired Users: A Submovement Analysis. In Proceedings of ASSETS 2004, (Atlanta, GA, USA, 2004), ACM Press, 102-109
- Jacko, J.A., Barreto, A., Marmet, G.J., Chu, J.Y.M., Bautsch, H.S., Scott, I.U. and Rosa, R.H., Jr., Low vision: the role of visual acuity in the efficiency of cursor movement. In Proceedings of ASSETS 2000, (Arlington, VA, USA, 2000), ACM Press, 1-8
- Kamel, H.M. and Landay, J.A., A Study of Blind Drawing Practices: Creating Graphical Information without the Visual Channel. In Proceedings of ASSETS 2000, (Arlington, VA, USA, 2000), ACM Press, 34-41
- Kamel, H.M. and Landay, J.A., Sketching Images Eyes-free: A Grid-based Dynamic Drawing Tool for The Blind. In Proceedings of ASSETS 2002, (Edinburgh, Scotland, 2002), ACM Press, 33-40.
- Keate, E., Javkin, H., Antonanzas-Barroso, N. and Zou, R., A system for teachnig speech to profoundly deaf children using synthesized acoustic & articulatory patterns. In Proceedings of ASSETS 1994, (1994), ACM Press, 17-22. http://doi.acm.org/10.1145/191028.191032
- Kitchin, R., Towards emancipatory and empowering disability research: reflections on three participatory action research projects. In Disability Research Conference, (Ireland, 2002), National Disability Authority.
- Koester, H.H. and Levine, S.P. Model simulations of user performance with word prediction. Augmentative and Alternative Communication, 14. 25-35, 1998
- Lehman, J.F., Towards the use of speech and natural language technology in intervention for a language-disordered population. In Proceedings of ASSETS 1998, (Marina del Rey, CA, USA, 1998), ACM Press, 19-26. http://doi.acm.org/10.1145/274497.274503.
- Lines, L. and Hone, K.S. Eliciting user requirements with older adults: lessons from the design of an interactive domeestic alarm system. Universal Access in the Information Society, 3. 141-148, 2004
- Litvak, S. and Enders, A. Support Systems: The Interface between Individuals and Environments. in Gary L. Albrecht, K.D.S.a.M.B. ed. Handbook of Disability Studies, Sage Publications, London, 2000, 711-733
- Mactavish, J.B., Mahon, M.J. and Lutfiyya, Z.M. “I Can Speak for Myself”: Involving individuals with intellectual disabilities as research participants. Mental Retardation, 38 (3). 228-233, 2000
- Mankoff, J., Fait, H. and Juang, R. Evaluating accessibility through simulating the experiences of users with vision or motor impairments. IBM Systems Journal. To Appear, 2005
- Mankoff, J., Fait, H. and Tran, T., Is your web page accessible? A comparative study of methods for assessing web page accessibility for the blind. In Proceedings of the ACM CHI’05 Conference on Human Factors in Computing Systems, (Portland, OR, USA, 1995), ACM Press, To Appear
- Mirenda, P. Toward functional augmentative and alternative communication for students with autism: Manual signs, graphic symbols, and voice output communication aids. Language, Speech, and Hearing in Schools, 34. 203-216, 2003
- Moffatt, K., McGrenere, J., Purves, B. and Klawe, M., The participatory design of a sound and image enhanced daily planner for people with aphasia. In Proceedings of the CHI’04 Conference on Human Factors in Computing Systems, (Vienna, Austria, 2004), ACM Press, 407-414. http://doi.acm.org/10.1145/985692.985744.
- Myers, B.A., Wobbrock, J.O., Yang, S., Yeung, B., Nichols, J. and Miller, R., Using Handhelds to Help People with Motor Impairments. In Proceedings of ASSETS 2002, (Edinburgh, Scotland, 2002), ACM Press, 89-96
- Mynatt, E.D., Melenhorst, A.-S., Fisk, A.D. and Rogers, W.A. Aware Technologies for Aging in Place: Understanding User Needs and Attitudes. Pervasive Computing. 36-41, 2004
- Mynatt, E.D. and Weber, G., Nonvisual presentation of graphical user interfaces: contrasting two approaches. In Proceedings of the ACM CHI ’94 Conference on Human Factors in Computing Systems, (Boston, MA, USA, 1994), ACM Press, 166-172. http://doi.acm.org/10.1145/191666.191732.
- Nielsen, J. Beyond Accessibility: Treating Users with Disabilities as People Alertbox, 2001. http://www.useit.com/alertbox/20011111.html.
- Paciello, M.G. Web accessibility for people with disabilities. CMP Books, 2000
- Park, J., Turnbull, A.P. and Turnbull, H.R., III Impacts of poverty on quality of life in families of children with disabilities. Exceptional Children, 68 (2). 151-170, 2002
- Parker, I. Reading Minds: If a person cannot move, talk, or even blink, is it possible to communicate with his brain? The New Yorker, 2003, 52. http://www.indiana.edu/~teleweb/cyberia/lockbrain.html.
- Raman, T.V., Emacspeak — A Speech Interface. In Proceedings of the ACM CHI ’96 Conference on Human Factors in Computing Systems, (Vancouver, BC, Canada, 1996), ACM Press, 66-71. http://www.cs.cornell.edu/Info/People/raman/publications/chi96-emacspeak/paper.html.
- Scherer, M.J. Living in the State of Stuck: How Assistive Technology Impacts the Lives of People with Disabilities. Brookline Books, Inc., Cambridge, 2000
- Senghas, R.J. and Monaghan, L. Signs of Their Times: Deaf Communities and the Culture of Language. Annual Review of Anthropology, 31. 69-97, 2002
- Shakespeare, T. and Watson, N. The social model of disability: An outdated ideology? Research in Social Science, 2. 9-28, 2002. http://www.leeds.ac.uk/disability-studies/archiveuk/archframe.htm.
- Shuttleworth, R. From experience to theory in anthropology’s engagement. Disability Studies Quarterly, 21 (3). 103-113, 2001
- Takagi, H., Asakawa, C., Fukuda, K. and Maeda, J., Accesibility Designer: Visualizing Usability for the Blind. In Proceedings of ASSETS’04, (Atlanta, GA, USA, 2004), ACM Press, 177-184. http://doi.acm.org/10.1145/1029014.1028662.
- Thatcher, J., Bohman, P., Burks, M., Henry, S.L., Regan, B., Swierenga, S., Urban, M.D. and Waddell, C.D. Constructing Accessible Web Sites. glasshaus, 2002
- Wasserman, D. Philosophical Issues in the Definition and Social Response to Disability. in Gary L. Albrecht, K.D.S.a.M.B. ed. Handbook of Disability Studies, Sage Publications, London, 2000, 219-251
- Wehmeyer, M. and Schwartz, M. Self-Determination and Positive Adult Outcomes: A follow-up study of youth with mental retardation or learning disabilities. Exceptional Children, 63 (2). 245-255, 1997
- Wu, M., Richards, B. and Baecker, R., Participatory Design with Individuals who have Amnesia. In Proceedings of the eight conference on Participatory Design, (Toronto, ON, Canada, 2004), ACM Press, 214-223. http://doi.acm.org/10.1145/1011870.1011895.
- Zhao, L., Kipper, K., Schuler, W., Vogler, C., Badler, N.I. and Palmer, M., A Machine Translation System from English to American Sign Language. In Proceedings of the fourth Conference of the Association for Machine Translation in the Americas on Envisioning Machine Translation in the Information Future, (2000), Springer-Verlag, 54-67
Articles on Participatory Research relating to disability
- Hartman, A., DePoy, E., , Francis, C. and Gilmer, D. (2000) Adolescents
with special health care needs in transition: Three life histories. Social
Work &Health Care, 31,4,3-58.
- DePoy, E. & Gilmer, D. (2000) Adolescents with disabilities and
chronic illness in transition: a community action needs assessment. Disability
Studies Quarterly, Spring, 2000.
- Gilson, S. F., Bricout, J. C., & Baskind, F. R. (1998). Listening
to the voices of individuals with disabilities. Families in Society, 79(2),
188-196. Social work literature, research, and practice on disabilities
has lagged behind other topical areas dealing with oppressed groups. The
social work literature remains “expert focused” and generally fragmented
into discussions of specific disabilities or subpopulations. A viable general
model that deals with the personal experience of disability is not available.
This exploratory study presents a social work literature search and analysis
as well as interviews with six individuals with disabilities about their
experiences with social workers and provides a base for follow-up research
on models of consumer-focused social work practice in the area of disability.
- Cook, P., Cook, M., Tran, L., & Tu, W. (1997). Children enabling
change: a multicultural, participatory, community-based rehabilitation research
project involving Chinese children with disabilities and their families.
Chil and Youth Care Forum, 26(3), 205-219. A participatory, action-oriented
research approach was used in developing community-based services for children
with disabilities in an urban Chinese community. The findings of the research
are discussed with the aim of building on community strengths to reinforce
existing family support programs and involve families and children with a
disability in such processes in a culturally appropriate manner.
- Beaulaurier, R. L., & Taylor, S. H. (1999). Self-determination
and consumer control: Guiding principles in the empowerment model as utilized
by the disability rights movement. In W. Shera & L. Wells (Eds.), Empowerment
practice: Developing richer conceptual foundations (pp. 159-177). Toronto:
Canadian Scholars Press.
- Balcazar, F. E., Keys, C. B., Kaplan, D. L., & Suarez-Balcazar,
Y. (1998). Participatory action research and people with disabilities: Principles
and challenges. Canadian Journal of Rehabilitation, 12(2), 105-112.
- Barnes, C., & Mercer, G. (Eds.). (1997). Doing disability research
(pp. 1-14). Leeds: The Disability Press, University of Leeds.?
- DisAbled Women’s Network (DAWN) Canada (1991). Research guidelines.
Brandon, Manitoba: Author.
- Felske, A. W. (1991). Research By/For/With Women with Disabilities.
North York, Ontario: Roeher Institute.
- French, S. (1994). Researching disability.? In S. French (Ed.),
On Equal Terms: Working with Disabled People (pp. 136-147).? Oxford:
- Lloyd, M., Preston-Shoot, M., Temple, B., with Wuu, R. (1996). Whose
project is it anyway? Sharing and shaping the research and development agenda.
Disability and Society, 11(3), 301-315.
- Oliver, M. (1992). Changing the social relations of research production.
Disability, Handicap and Society, 7(2), 101-114.
- Rioux, M. H. & Bach, M. (Eds.). (1994). Disability is not measles:
New research paradigms in disability. North York, Ontario: Roeher Institute.
- Tewey, B. (1997). Building participatory action research partnerships
in disability and rehabilitation research. Washington, DC: The National Institute
on Disability and Rehabilitation Research.
- Woodill, G. (1992). Independent living and participation in research:
A critical analysis. Discussion paper.? Toronto: Center for Independent
- Zarb, G. (1992). On the road to Damascus: First steps towards changing
the relations of disability research production. Disability, Handicap and
Society, 7(2), 125-138.
- Some good authors to search: Mike Oliver, Gery Zarb, Colin Barnes.
- Knox, M. & Hickson, F. (2001).? The meaning of close friendships:
the views of four people with intellectual disability.? Journal of Applied
Research in Intellectual Disabilities, Vol. 14, pp. 276-291.? [NB: Marie
Knox has done a quite a bit of work in area of participatory research – she
is Senior Lecturer in the School of Human Services, Queensland University
of Technology, Beams Road, Carseldine, Queensland, Australia, 4034; firstname.lastname@example.org
- Mactavish, J., Mahon, M. & Lutfiyya, Z. (2000).? I can speak
for myself: involving individuals with intellectual disabilities as research
participants.? Mental Retardation, Vol. 38, pp. 216-227.
Jennifer Mankoff | University of Washington