Lyme Disease’s Impact

An ongoing, and very personal thread of research that our group engages in (due to my own journey with Lyme Disease, which I occasionally blog about here) is research into the impacts of Lyme Disease and opportunities for helping to support patients with Lyme Disease. From a patient perspective, Lyme disease is as tough to deal with as many other more well known conditions [1].

Lyme disease can be difficult to navigate because of the disagreements about its diagnosis and the disease process. In addition, it is woefully underfunded and understudied, given that the CDC estimates around 300,000 new cases occur per year (similar to the rate of breast cancer) [2].

Bar chart showing that Lyme disease is woefully under studied.

As an HCI researcher, I started out trying to understand the relationship that Lyme Disease patients have with digital technologies. For example, we studied the impact of conflicting information online on patients [3] and how patients self-mediate the accessibility of online content [4]. It is my hope to eventually begin exploring technologies that can improve quality of life as well.

However, one thing patients need right away is peer reviewed evidence about the impact that Lyme disease has on patients (e.g. [3]) and the value of treatment for patients (e.g. [4]). Here, as a technologist, the opportunity is to work with big data (thousands of patient reports) to unpack trends and model outcomes in new ways. That research is still in the formative stages, but in our most recent publication [4] we use straightforward subgroup analysis to demonstrate that treatment effectiveness is not adequately captured simply by looking at averages.

This chart shows that there is a large subgroup (about a third) of respondents to our survey who reported positive response to treatment, even though the average response was not positive.

There are many opportunities and much need for further data analysis here, including documenting the impact of differences such as gender on treatment (and access to treatment), developing interventions that can help patients to track symptoms, manage interaction within and between doctors, and navigate accessibility and access issues.

[1] Johnson, L., Wilcox, S., Mankoff, J., & Stricker, R. B. (2014). Severity of chronic Lyme disease compared to other chronic conditions: a quality of life survey. PeerJ2, e322.

[2] Johnson, L., Shapiro, M. & Mankoff, J. Removing the mask of average treatment effects in chronic Lyme Disease research using big data and subgroup analysis.

[3] Mankoff, J., Kuksenok, K., Kiesler, S., Rode, J. A., & Waldman, K. (2011, May). Competing online viewpoints and models of chronic illness. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (pp. 589-598). ACM.

[4] Kuksenok, K., Brooks, M., & Mankoff, J. (2013, April). Accessible online content creation by end users. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (pp. 59-68). ACM.

 

3D Printed Wireless Analytics

Wireless Analytics for 3D Printed Objects: Vikram Iyer, Justin Chan, Ian Culhane, Jennifer Mankoff, Shyam Gollakota UIST, Oct. 2018 [PDF]

We created a wireless physical analytics system works with commonly available conductive plastic filaments. Our design can enable various data capture and wireless physical analytics capabilities for 3D printed objects, without the need for electronics.

We make three key contributions:

(1) We demonstrate room scale backscatter communication and sensing using conductive plastic filaments.

(2) We introduce the first backscatter designs that detect a variety of bi-directional motions and support linear and rotational movements. An example is shown below

(3) As shown in the image below, we enable data capture and storage for later retrieval when outside the range of the wireless coverage, using a ratchet and gear system.

We validate our approach by wirelessly detecting the opening and closing of a pill bottle, capturing the joint angles of a 3D printed e-NABLE prosthetic hand, and an insulin pen that can store information to track its use outside the range of a wireless receiver.

 

People

Students

Vikram Iyer
Justin Chan
Ian Culhane

Faculty

Jennifer Mankoff
Shyam Gollakota

Contact: printedanalytics@cs.washington.edu

Venkatesh Potluri

Venkatesh Potluri is a Ph.D. student at the Paul G. Allen Center for Computer Science & Engineering at University of Washington. He is advised by Prof Jennifer Mankoff and Prof Jon Froehlich. Venkatesh believes that technology, when designed right, empowers everybody to fulfill their goals and aspirations. His broad research goals are to upgrade accessibility to the ever-changing ways of our interactions with technology, and, improve the independence and quality of life of people with disabilities. These goals stem from his personal experience as a researcher with a visual impairment. His research focus is to enable developers with visual impairments perform a variety of programming tasks efficiently. Previously, he was a Research Fellow at Microsoft Research India, where his team was responsible for building CodeTalk, an accessibility framework and a plugin for better IDE accessibility. Venkatesh earned a master’s degree in Computer Science at International Institute of Information Technology Hyderabad, where his research was on audio rendering of mathematical content.

You can find more information about him at https://venkateshpotluri.me

Accessibility Seminar

The Accessibility Seminar (CSE 590W) is taught most quarters. This fall (2018), it will be taught at 2:30 on Wednesdays. The focus will be at the intersection of fabrication and assistive technology.

Past years in which I was involved

Interactiles

The absence of tactile cues such as keys and buttons makes touchscreens difficult to navigate for people with visual impairments. Increasing tactile feedback and tangible interaction on touchscreens can improve their accessibility. However, prior solutions have either required hardware customization or provided limited functionality with static overlays. In addition, the investigation of tactile solutions for large touchscreens may not address the challenges on mobile devices. We therefore present Interactiles, a low-cost, portable, and unpowered system that enhances tactile interaction on Android touchscreen phones. Interactiles consists of 3D-printed hardware interfaces and software that maps interaction with that hardware to manipulation of a mobile app. The system is compatible with the built-in screen reader without requiring modification of existing mobile apps. We describe the design and implementation of Interactiles, and we evaluate its improvement in task performance and the user experience it enables with people who are blind or have low vision.

XiaoyiZhang, TracyTran, YuqianSun, IanCulhane, ShobhitJain, JamesFogarty, JenniferMankoff: Interactiles: 3D Printed Tactile Interfaces to Enhance Mobile Touchscreen Accessibility. ASSETS 2018: To Appear [PDF]

Figure 2. Floating windows created for number pad (left), scrollbar (right) and control button (right bottom). The windows can be transparent; we use colors for demonstration.
Figure 4. Average task completion times of all tasks in the study.

Nonvisual Interaction Techniques at the Keyboard Surface

Rushil Khurana,Duncan McIsaac, Elliot Lockerman,Jennifer Mankoff Nonvisual Interaction Techniques at the Keyboard Surface, CHI 2018, To Appear

A table (shown on screen). Columns are mapped to the number row of the keyboard and rows to the leftmost column of keys, and (1) By default the top left cell is selected. (2) The right hand presses the ‘2’ key, selecting the second column (3) The left hand selects the next row (4) The left hand selects the third row. In each case, the position of the cell and its content are read out aloud.

Web user interfaces today leverage many common GUI design patterns, including navigation bars and menus (hierarchical structure), tabular content presentation, and scrolling. These visual-spatial cues enhance the interaction experience of sighted users. However, the linear nature of screen translation tools currently available to blind users make it difficult to understand or navigate these structures. We introduce Spatial Region Interaction Techniques (SPRITEs) for nonvisual access: a novel method for navigating two-dimensional structures using the keyboard surface. SPRITEs 1) preserve spatial layout, 2) enable bimanual interaction, and 3) improve the end user experience. We used a series of design probes to explore different methods for keyboard surface interaction. Our evaluation of SPRITEs shows that three times as many participants were able to complete spatial tasks with SPRITEs than with their preferred current technology.

Talk [Slides]:

Sample Press:

KOMO Radio | New screen reader method helps blind, low-vision users browse complex web pages

Device helps blind, low-vision users better browse web pages. Allen Cone

Graph showing task completion rates for different kinds of tasks in our user study
A user is searching a table (shown on screen) for the word ‘Jill’. Columns are mapped to the number row of the keyboard and rows to the leftmost column of keys. (1) By default the top left cell is selected. (2) The right hand presses the ‘2’ key, selecting the second column (3) The left hand selects the next row (4) The left hand selects the third row. In each case, the number of occurrences of the search query in the respective column or row are read aloud. When the query is found, the position and content of the cell are read out aloud.

Making the field of computing more inclusive for people with disabilities

Lazar, J., Churchill, E. F., Grossman, T., Van der Veer, G., Palanque, P., Morris, J. S., & Mankoff, J. (2017). Making the field of computing more inclusiveCommunications of the ACM60(3), 50-59.

More accessible conferences, digital resources, and ACM SIGs will lead to greater participation by more people with disabilities. Improving conference and online material accessibility has been an ongoing project that I’ve been lucky enough to help with. This effort, led by a wide set of people, is spearheaded currently by the SIGCHI Accessibility Community (also on facebook, summarized in a recent Interactions blog post.

 

A Beam Robot Jen is using to attend a conference